Living With Chronic Pain

This week has been tough....hell this month has been tough..wait a minute actually this whole year so far has been tough!

I have a few different illnesses PCOS, Endometriois, IBS and Epiploic Appendagitis which individually I can deal with but together knock me for six!

The past two weeks have been especially bad as I have a flare up with my IBS,  twisted bowel and Endometriois which has left me in alot of pain and bed ridden.

I also found out last month that the cysts on my left ovary has got bigger which has me in alot of pain.

I am currently waiting on the results of more tests, while also waiting to go back to the hospital next week for more tests and CT Scans

Living with chronic pain is a constant up hill battle, so far this year I have lost count of the amount of tests, scans and appoinments I have had! I feel like am living in my bed as I'm either exhasusted from fatguie or in so much pain. I have cancelled so many plans, girl nights out, dinners, lunches and family days out as I can't move due to pain. I have bought Oisìn toys to back up for the fact that most of the time I am in too much pain or so exhausted to do much with him. Which leads to a whole load of guilt on my part which is another post in itself.
Thank goodness for childcare, his wonderful Daddy and Grandparents

I have finished up in my job where I have been for five years and while it had its up and downs I did enjoy my job. Due to my chronic pain I have had to give up work for the foreseeable future as most days I can hardly manage to get out of bed never mind head to a desk in an office!

The fact that all my chronic pain is due to invisible illnesses PCOS, Endometriois, IBS and the twist in my bowel are not something people see and only my close family and friends really understand the pain I am in. What really bothers me is when people think oh Endometriois sure that's like PMS! Time it by 100 and you might be on the right track!

Some days are worse than others, some days I can get out of bed and feel semi normal, good days I can play with my little boy, go to the park and do family days out. I love those days because they remind me of a time last year when I could function normally and enjoy life. When I could deal with my illnesses individually, when I wasn't taking pain relief and a course of different tablets each day, when I didn't spent most of my time in doctor or hospital waiting rooms, or in bed asleep.

No matter what, I believe, I will get back to that normality, it might not be today, next week or even next year but I will get there. 

I will get back to being me

Today is a bad day but there is always tomorrow

Over The Weekend #29

This weekend was a slow one

today we had lovely weather

so we spent it in the garden

I started off the weekend on Friday
when my friend and I went to
The Honeycomb cafe for brunch once again the food and service was amazing
My friend had the French toast while I had the Eggs Benedict it was Delicious

Saturday we had plans for the beach but the weather in Dublin was grey and cold
So we headed to soft play and then the library with Oisìn

Then it was home to a tea of Slimming World Taco fries

I had a bit of chronic pain all day Saturday which I put to the back of my mind

but my Saturday evening I was in alot of pain again!

It is so frustrating the pain medication works for a while but then

after a couple of weeks I am back to square one

So Paul and I cuddled up with a glass of wine and Outlander

We spent Sunday getting our back garden Summer ready

When I say we I mean mostly Paul with Oisìn playing in his garden house

and me helping when the chronic pain wasn't too bad

Hopefully the good weather will stay awhile! 

Over The Weekend #24

This weekend Paul was working so it was just Oisín and I 

we had a couple of days of mother and son time!

Saturday morning this little one enjoyed his blueberry porridge!

Maybe it was because my chronic pain was bad this weekend

or it's a phase Oisín is going through but this weekend he was very clingy

Couldn't leave his side for a moment and he was following me, calling for me

asking me to join in with his games or helping him drawn and paint

While I love that he wants me to play with him but with twisted bowel so bad

and I had major fatigue this weekend I just needed him to play by himself

for half an hour or so. So I remember some toys Oisín got for Christmas

which I had put up because he got some many

He enjoyed playing with them for all of ten minutes!

So we went out to the park

We brought bread to feed the ducks

and it was fine weather for the ducks!

Damp and drizzle rain so we didn't stay for very long!

When we got home I made Oisín a hot chocolate and put on his favourite movie Toy Story 3

So while he was happy and quiet I made a cuppa and enjoyed reading my book!

Sunday was mostly a write off!! I was in bad pain and found it an effort to get dressed
Thankfully Paul was only in work for a short day so when he got home
I went back to bed with a hot water bottle, pain killers and a book!

Sick Day, Sick Week, Sick Sodding Month!!

As my illness lingers on and on! This month has just been about me being unwell

every day since before Christmas I have been dealing with waking up in some sort of pain

Hopefully next week I will finally get some answers and figure out what happens next

with my twisted bowel.

Until then I am sick with an ear, throat and sinus infection as well as swollen glands!

Aw the joys of it all!! 

I hate seeing my child sick and do everything to try help him, but when it comes to myself

I soldier on until someone puts me to bed to rest! Normally its the hubby but this time

it was my Mother In Law who has kindly took Oisín for a sleep over tonight

so I can rest!

My version of resting is blogging, reading, watching boxsets and vlogs!

I have tried to sleep but my stuffed up sinuses made that impossible, I have tried to close my

eyes to rest but can't stop coughing which then sets of the pain in my bowel!

There are a few things I will do today which will make me feel

some what human again! I will try shove the last of

my Mammy's Irish stew into my sore throat for a late lunch

it always makes me feel a little better! While eating that I will

watch my new favourite Netflix boxset Daredevil. I will then run a hot bath

and use one of my Lush bath melts this one is my favourite at the moment The Comforter

while in the bath I will have a face full of No7-Beautiful Skin Hydration Mask I love this

product my skin is so very dry and grey due to all the medication I am on an this leaves my skin

so soft and looking bright.

After all that I should feel relaxed so I will curl up in bed

with a good book. Hubby will be home from work then and

he can look after the patient with a hot drink and cuddles!

Over The Weekend #15

As I am not well with this on-going twisted bowel

our weekends have been slow throughout January

I am hoping this will change in Feb when I see my surgeon

and get a date for my operation  

The past weekends have been spent relaxing,

watching movies, and letting Daddy take over

while I rest and this weekend wasn't much different

I spent most of Friday evening

curled up on the sofa finishing this 

amazing beautiful book

review will be in this months 

what I read!

Saturday morning I felt well enough

for a little stroll in the park with

my two main men! They both got hair cuts

and by lunch time I was shattered and in pain

so curled up with a boxset, cuppa and candle!

Sunday morning I felt well enough to get

up early with Oisín and give hubby much needed

weekend lie in. He has been getting up early every

weekend with Oisín while I have been sick

so he really need a lie on! It was

so dull and grey Sunday morning that I 

think I lit every candle in the house to

cheer myself up!

 I was craving comfort food all day

Sunday so hubby done some yummy garlic and apple

bangers with onion and mushroom mash yum!

More comfort food melt in the middle chocolate pud

cream, and a small glass of wine

while we watched Call The Midwife

on Sunday night!